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WHO WE ARE
Hello and welcome to the Carney Family CADASIL website. We decided to start this website in order to get our story and information about this disease out to more people, not only in our area here in the Midwest, but worldwide. Back in 2017, we decided as a family, to set up a fundraiser in support of our brother and his family, that have been affected directly by CADASIL. This disease currently does not have any treatment or cure. Due to very little research, there is not much information available to help diagnose or treat CADASIL.
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We started a fundraiser back in 2017 in which 100% of all money raised has been donated. From then on moving forward, every penny contributed will continue to aid in future research in order to help find a cure.
WHAT WE DO
Simply put, the Carney family donates their own money and hundreds of hours of time and labor year round, in order to do what is needed for CADASIL research to continue. We spend time going door to door to local companies, looking for either monetary donations or items that can be sold or auctioned off, in which the profits will be then deposited into the CADASIL account. We also work continuously searching online through Facebook messenger, Craigslist, and other platforms looking for products that can be donated or purchased at a minimal cost to basically turn for profit to benefit CADASIL. Every year prior to 2020, the Carney family holds many fundraising events, including auctions, car shows, live music, and much more to help bring awareness to their communities.
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The Carney family's number one goal is to assist in any ways needed to not only help bring awareness of CADASIL to as many people as possible, but to also help find a cure.